MRI Results

We finally talked to Dr. Franz's nurse. I have been a basket case all day waiting!!! Waiting is the worst! The news was that there was not really any new news. Which is good. The tumor we are watching has not grown. They are still not sure if the one tumor we are watching it is a SEGA (the kind that grows) or just a nodule (the kind that does not effect them). We will just have to keep checking it every three months. No fun! It also looked like she may have a tumor in her eye that we have to go have checked at the eye doctor. I was concerned about her vision, but she said the tumors in the eye very rarely have any effect on them. They just have to be monitored. We have to go back at the end of June for a check up with the doctor and he will go over the MRI in more detail then. Until then we just have to make sure she is doing well developmentally and not having any seizures. Doctors appointments are just a constant way of life for us these days, but as long as things keep going well I will not complain.

Ben has made friends with a girl in Australia who has a daughter a few months older than Kallan with TSC. That baby is not doing well at all and has been in the hospital for a while now with uncontrollable seizures. I am praying so hard for this baby. It breaks my heart to think about what they are going through and at the same time it makes me realize how fortunate we are. By the grace of God we go....

Off the subject, but I just want to clarify because it seems that everyone is pronouncing Kallan as Kaylan. It is not that. It is pronounced like Allan with a K. Kallan. Which as I have mentioned before means powerful in battle.

And a quick side note that I think is really cool..... There is a girl who we have gotten to know that lives out here at the lake with us and goes to our church who has two little girls named Kensley and Callyn (pronounced like Kallan)! How crazy is that??? They are both such uncommon names!

The walk is tomorrow! Thank you thank you thank you to all who have donated. I cannot say that enough. We have got to find a cure for this awful disease. We just have to. It is my mission. Without money there will be no cure. So, again thank you.