Sunday, March 14, 2010

First Smiles


As you can see from the pictures, Kallan has started smiling! She smiles so big all the time! It is the sweetest thing I have ever seen. It melts our hearts and makes it all worth while. If she just smiles like that at us every day we feel like we can keep going and fighting. This week, Ben was walking out the door to go to work and went to kiss me and Kallan goodbye. When Kallan heard his voice she absolutely lit up. It totally made Ben's day. He left the house more motivated than ever.

Kallan now smiles every time she sees me and gives me the sweetest looks. Sometimes I think she believes in me more than I believe in myself to take care of her. She is also starting to try to talk to us. She works so hard to give us a goo. It is a really good sign that she smiling and trying to make sounds. She is developing exactly like she should so far! We talk to her as much as possible and try to give her lot's of stimulation. She is so affectionate, which is also a good sign.
We have also officially been working on the fundraising for a week now. We have been blown away by our friends' generosity. We cannot even begin to express in words how touched we are by the selfless acts of kindness shown by friends and family that have sponsored Kallan's Walk for the Cure. We are truly Blessed.

Ben and I have found that we are only a degree or two away from many of the Georgia legislators in Washington, D.C. that the TSC alliance is currently lobbying for support of a fifteen million dollar allotment this year for TSC research through a bill that funds research for rare diseases. If any of our friends have a relationship with a Congressman or Senator, we would be indebted to you if you would let us give you a letter to deliver care of you for supporting the request for TSC funding

Each day is a journey into the unknown. Many say that the worst thing about TSC is the not knowing and the waiting, but we are choosing to enjoy each moment and lean on our faith in God for watching over Kallan and giving us the strength to support her no matter what waits around the corner.

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